Medical Home Resources
Resources that Accompany the Training:
Data and Statistics
- Data Resource Center for Child and Adolescent Health (DRC): Medical Home Data Portal. State medical home performance profiles for all children or children with special health care needs. Includes options to search for additional medical home data and links to resources about the medical home. (Data Source: 2007 National Survey of Children's Health)
National Survey of Children's Health. This survey includes physical and mental health status, access to quality health care, as well as information on the child's family, neighborhood and social context. Survey section 5 covers medical home. Search for state and national data which can be further refined to assess differences by race/ethnicity, income, special health care needs status and a variety of other important demographic and health status characteristics. The survey was conducted in 2003, 2007, and 2011-2012.
National Survey of Children with Special Health Care Needs. This survey assesses the health and functional status of children with special health care needs including physical, emotional and behavioral health, along with information on access to quality health care, care coordination of services, access to a medical home, transition services for youth, and the impact of chronic condition(s) on the child's family. The survey was conducted in 2001, 2005-2006, and 2009-2010.
- Healthy People 2020: Maternal, Infant, and Child Health. Two objectives address medical homes:
(1) MICH-30 Increase the proportion of children, including those with special health care needs, who have access to a medical home. See Healthy People 2020 Structured Evidence Queries for an automated search of published literature indexed in PubMed and related to this objective.
(2) MICH-31 Increase the proportion of children with special health care needs who receive their care in family-centered, comprehensive, and coordinated systems. See Healthy People 2020 Structured Evidence Queries for anautomated search of published literature indexed in PubMed and related to this objective.
- National Academy for State Health Policy (NASHP): Medical Home and Patient-Centered Care. Profiles of state efforts to advance medical homes for Medicaid and Children's Health Insurance Program (CHIP) participants. Includes information about strategies states are using to implement and strengthen medical homes: forming partnerships, defining and recognizing medical homes, aligning reimbursement and purchasing, supporting practices, and measuring results. See NASHP's collection of reports about lessons learned from states' experiences.
- National Center for Medical Home Implementation (NCMHI). Resources about the medical home approach to high-quality, comprehensive health care for all children, including those with special health care needs. Includes tools for developing and implementing a medical home, training programs and materials, information about the Affordable Care Act and the medical home, and information about national and state initiatives. See Medical Home Initiatives and Resources by State.
- Patient Centered Medical Home (PCMH) Resource Center. Evidence-based resources about the medical home and its potential to transform primary care and improve the quality, safety, efficiency, and effectiveness of U.S. health care. Includes a toolbox of methods used to evaluate and refine PCMH models and other health care interventions and papers about designing strong evaluations and developing the evidence base for the medical home model. Also presents an archive of federal PCMH activities and tools and resources for implementing the PCMH model.
- Patient-Centered Primary Care Collaborative. Publications about the patient centered medical home including evidence based reports about the impact of the medical home model on health care costs and quality of care. SeeMapping the Medical Home Movement for information about public and private programs using patient centered medical homes and enhanced primary care teams in each state. Also includes a database of patient centered primary care training programs.
- American Academy of Family Physicians (AAFP), American Academy of Pediatrics (AAP), American College of Physicians (ACP), and American Osteopathic Association (AOA). 2007. Joint principles of the patient centered medical home. Washington, DC: Patient Centered Primary Care Collaborative.
- American Academy of Pediatrics; Medical Home Initiatives for Children With Special Needs Project Advisory Committee. 2002 (reaffirmed 2008). The medical home. Pediatrics 110(1):184-186.
- VanLandeghem K, Sloyer P, Gabor V, Helms V. 2014. Standards for systems of care for children and youth with special health care needs. Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA: Lucile Packard Foundation for Children's Health.
- Hadland SE, Long WE. 2014. A systematic review of the medical home for children without special health care needs. Maternal and Child Health Journal 18(4):891-898. View abstract.
- Homer C, Klatka K, Romm D, Kuhlthau K, Bloom S, Newacheck P, Van Cleave J, Perrin JM. 2008. A review of the evidence for the medical home for children with special health care needs. Pediatrics 122(4):e922-e937. View abstract.
- Hossain M, Coughlin R, Zickafoose J. 2014. CHIPRA quality demonstration states help school-based health centers strengthen their medical home features. Rockville, MD: Agency for Healthcare Research and Quality (AHRQ). [National Evaluation of the CHIPRA Quality Demonstration Grant Program, Evaluation Highlight No. 8].
- Williams JW, Jackson GL, Powers BJ, Chatterjee R, Prvu Bettger J, Kemper AR, Hasselblad V, Dolor RJ, Irvine RJ, Heidenfelder BL, Kendrick AS, Gray R. 2012. Patient-centered medical home. Closing the quality gap: Revisiting the state of the science. Rockville, MD. Agency for Healthcare Research and Quality.
- Adams RC, Tapia C and the Council on Children with Disabilities. 2013. Early intervention, IDEA Part C services, and the medical home: Collaboration for best practice and best outcomes. Pediatrics 132(4):e1073-e1088.
- Association of Maternal and Child Health Programs. 2010. Health reform: What's in it to promote the medical home?Washington, DC: Association of Maternal and Child Health Programs. The report identifies a number of strategies for promoting medical homes at the state and local level.
- Bachrach A, Isakson E, Seith D, Brellochs C. 2011. Pediatric medical homes: Laying the foundation of a promising model of care. New York, NY: National Center for Children in Poverty.
- Commonwealth Fund. 2014. The Safety Net Medical Home Initiative: Patient-centered care for the safety-net system. Washington, DC: Commonwealth Fund.
- Hughes D. 2014. Review of the literature pertaining to family-centered care for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health.
- Lobas JG. 2014. The missing piece: Medical homes for California's children with medical complexity. Palo Alto, CA: Lucile Packard Foundation for Children's Health.
- McAllister JW, Cooley WC, Van Cleave J, Boudreu AA, Kuhlthau K. 2013. Medical home transformation in pediatric primary care: What drives change? Annals of Family Medicine 11(Suppl 1):S90-S98.
- National Center for Cultural Competence. 2011. Community engagement and partnerships improve access to medical homes: Promising practices. Washington, DC: National Center for Cultural Competence, Georgetown University Center for Child and Human Development.
- National Governors Association. 2013. Effect of provider payment reforms on maternal and child health services. Washington, DC: National Governors Association.
- Oral Health Commission Safety Net Workgroup. 2011. Patient centered medical-dental home initiatives: A survey of current and future strategies to coordinate care in Rhode Island. Providence, RI: State of Rhode Island Oral Health Commission.
- Schor EL, Bergman DA. 2013. A Triple Aim practice for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health.
- Stille C, Turchi RM, Antonelli R, Cabana MD, Cheng TL, Laraque D, Perrin J, Academic Pediatric Association Task Force on Family-Centered Medical Home. 2010. The family-centered medical home: Specific considerations for child health research and policy. Academic Pediatrics 10(4):211-217.
- Strickland BB, Jones JR, Ghandour RM, Kogan MD, Newacheck PW. 2011. The medical home: Health care access and impact for children and youth in the United States. Pediatrics 127:604-611.
- Toomey SL, Cheng TL, Academic Pediatric Association - American Academy of Pediatrics Workgroup on the Family-Centered Medical Home. 2013. Home visiting and the family-centered medical home: Synergistic services to promote child health. Academic Pediatrics 13(1):3-5. View abstract.
- U.S. Maternal and Child Health Bureau. 2011. Collaboration and action to improve child health systems: Toolkit for state leaders. Rockville, MD: U.S. Maternal and Child Health Bureau.
- Walker I, McManus MA, Fox HB. 2011. Medical home innovations: Where do adolescents fit? Washington, DC: National Alliance to Advance Adolescent Health.